Friday, September 16, 2016


"You're a superhero for all that you do."

I get this one a lot. Many autism parents do. When people hear about our kids, they automatically think that we are superheroes for keeping our cool and a smile on our faces all the time. They think we're conquering the world by having special needs kids, like we're Superman or Wonder Woman, impervious to the pains of the average human being. For a while, I believed them. I felt like I was extra special because I was overcoming such a great obstacle in life. I felt like I was faster than a speeding bullet, and more powerful than a locomotive. Nothing could take me down.

It took me a while to realize that I was none of these things.

I am no Wonder Woman.

If anything, I am more like Batman.

See, Batman is just a human. No alien super powers. No bullet proof gauntlets or lasso of truth. He's not immune to pain and is only equipped with the gadgets he's made and the power of his brain. He gets bruised, he's been beaten down, and has been emotionally and physically broken. And where I don't have any gadgets, I get up every morning equipped only with the power of my brain. I don't know what kind of mood my kiddos are are going to be in when they get up, and what the day is going to bring. I have to assess each situation as it arises and use my detective skills to figure my way out of the difficult ones while protecting the greater good, aka Jordan and Johnny's well being. I feel pain, like when I see them struggle to control their feelings or when they melt down and there's nothing I can do to help them. I haven't been physically broken, but the emotional breaks happen more often than I'd like to admit. I lose my cool. I cry and frequently feel defeated.

So no, I'm not a super hero. I am not immune to pain and I don't always know how to handle a situation. I am merely a person, getting through every day with my wit and my skill. The skill that any woman or man acquires when they don the cowl and become a parent.

Or when they put on their Batman pajama pants.

Be the hero that your children need and the one that Gotham deserves.

Peace and Love


Tuesday, September 13, 2016


I should start by summing up August, because I promised a blog and got sidetracked and bogged down and didn't get to write one.

So we took the kiddos to New Hampshire to visit my sister, which they loved. They had their first overnight in a hotel, which despite Dad and I not sleeping went surprisingly well. There was only one massive meltdown when the engine on the boat died in the middle of the lake and we couldn't get to the beach right away as planned. Johnny unfortunately lost it, because things just didn't go according to plan. But other than that, they had a ball and can't wait to go back. ESY ended, and the subsequent two weeks were a roller coaster of bad days and good, which is entirely typical and happens every year.

Which brings me up to now. Here we are in the third week of the new school year. Well, sort of. School started on August 30th. They went back for three days, had four days off for Labor Day weekend, then went back for two days, had Thursday off for the primary elections, and then went back on Friday. So technically, even though it's the third week, it's really the first week because it's the first FULL week.

Did that schedule make you nuts?

 It drove us crazy We all know that consistency is crucial to our kiddos' lives. And the lack of consistency this school year so far has really taken it's toll on Johnny. He loves school, loves his teachers and loves his friends. Thus far, because he hasn't been given a chance to really transition, he's been abnormally physical in his non compliance, his stims have come back with a vengeance to the point of distraction, and he cannot sit still or focus. It's been disconcerting to say the least to have gotten more bad notes home than good.

Transitions are always tough, and it's especially difficult when the school system, which claims to work with parents, creates this wacky schedule that provides no structure for the kids to adhere to. I wish they'd remember that all kids are not the same and can not adjust so easily.

Here's hoping that these next few solid weeks help Johnny get back into the swing of things and on the road to success!!

Peace and Love